Professional Organizations
American Academy of Neurology (AAN)
The AAN is an international professional association of neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.
www.aan.com
American Epilepsy Society (AES)
The AES promotes research and education for professionals dedicated to the prevention, treatment, and cure of epilepsy.
www.aesnet.org
International League Against Epilepsy (ILAE)
The mission of the ILAE is to provide the highest quality of care and well-being for patients with epilepsy and related seizure disorders.
www.ilae-epilepsy.org
National Association of Epilepsy Centers (NAEC)
With the goal of no seizures and no side effects, the NAEC educates public and private policymakers and regulators about appropriate patient care standards, reimbursement, and medical services policies.
www.naec-epilepsy.org
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UCB Resources for Healthcare Professionals
UCB AED Pregnancy Registry
UCB, Inc. has established the UCB AED Pregnancy Registry to advance scientific knowledge about safety and outcomes associated with pregnant women being treated with any epilepsy medications from UCB, including Vimpat. To ensure broad program access and reach, either a healthcare provider or the patient can initiate enrollment in the UCB AED Pregnancy Registry by calling (888) 537-7734 (toll free). Patients may also enroll in the North American Antiepileptic Drug Pregnancy Registry by calling (888) 233-2334 (toll free).
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Courses and CME
Neurology Residents Scholarship Program (NRSP)
An intensive 2-day course addressing clinical aspects of epilepsy for second- and third-year neurology residents.
www.nrsponline.com
American Academy of Neurology CME
Online CME from the journal Neurology.
intl-cme.neurology.org/cgi/hierarchy/aancme_node;neurology2008
Doctors’ Guide CME
Provides links to online CME activities, which can be sorted by specialty.
www.docguide.com
Epilepsy.com CME
A variety of online epilepsy-related CME activities.
professionals.epilepsy.com/secondary/continuing_medical_education.html
Medscape CME
A listing of online CME offerings within the Medscape Epilepsy Resource Center.
www.medscape.com/resource/epilepsy/rc-epilepsy3 (registration required)
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UCB Resources for Patients
Epilepsy Advocate
Epilepsy Advocates are a community of people and their families living with epilepsy. The site includes inspiring stories and interactive video diaries as well as practical advice, Webcasts, monthly e-mails, and a magazine.
www.epilepsyadvocate.com
Epilepsy Advocate L.I.V.E. Events
Epilepsy Advocate Learn from Inspiring Voices with Epilepsy (L.I.V.E.) events offer a chance for people with epilepsy to connect with the local epilepsy community. Each event features inspiring personal stories; information from physician experts about epilepsy, current treatments, and medications; and a Q&A session.
www.epilepsyadvocate.com/events/events.aspx
Epilepsy Classroom™
Created by pediatric neurologist G. Dean Timmons, MD, and Associate Professor Beverly Timmons, EdD, Epilepsy Classroom features tools and resources to help students, teachers, and parents understand epilepsy, know how to respond to seizures, and to feel comfortable talking about it.
www.epilepsyclassroom.com
UCB AED Pregnancy Registry
UCB, Inc. has established the UCB AED Pregnancy Registry to advance scientific knowledge about safety and outcomes associated with pregnant women being treated with any epilepsy medications from UCB, including Vimpat. To ensure broad program access and reach, either a healthcare provider or the patient can initiate enrollment in the UCB AED Pregnancy Registry by calling (888) 537-7734 (toll free). Patients may also enroll in the North American Antiepileptic Drug Pregnancy Registry by calling (888) 233-2334 (toll free).
The UCB Family Epilepsy Scholarship Program™
The UCB Family Epilepsy Scholarship Program provides financial support to encourage academic and personal achievement not just to people with epilepsy, but also to the family members and caregivers who contribute to their successes. UCB, Inc. awards thirty $5,000 scholarships a year, and since 2005, has awarded over half a million dollars in scholarships.
www.epilepsyadvocate.com/resources/scholarship.aspx
The Vimpat Patient Savings Program
Patients with commercial prescription insurance can sign up to receive $30 off each of their next 12 co-pays for Vimpat.
www.vimpat.com/resources/patient_savings_program.aspx
The Vimpat Patient Web Site
A source for inspiration, offering video profiles of patients who are striving for “epilepsy independence” as well as information on epilepsy and Vimpat. The site includes special content for caregivers and for women and seniors with epilepsy.
www.vimpat.com
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Other Patient Resources
Canine Assistants Program
Canine Assistants is a non-profit organization that provides service dogs for children and adults with physical disabilities or other special needs, including epilepsy.
www.canineassistants.org
Epilepsy Foundation H.O.P.E. Mentoring Program
The H.O.P.E. Mentoring Program (Helping Other People with Epilepsy) was created to allow people who live with epilepsy to educate others and share their experiences. This educational program trains people with epilepsy to be “patient educators” throughout the epilepsy and neurology communities.
http://www.epilepsyfoundation.org/programs/hope.cfm
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