Get inspiration from personal epilepsy stories

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Get inspiration from personal epilepsy stories

If you're living with epilepsy, you may be asking yourself: How do I cope at work? What about my family and friends? Is my level of seizure control the best it can be? Am I ready to say that being just okay just isn’t good enough? Am I just doing “okay”?

If you have not yet achieved your personal best level of seizure control, are you ready to say that “just okay” just isn't good enough?

The good news is that you are not alone! In Shared Perspectives, patients share their personal experiences of life with partial-onset seizures and the moment they decided that their level of partial-onset seizure control was no longer acceptable. Of course, everyone’s experience is different, and only you and your doctor can decide what’s best for you. Talk with your doctor before starting any treatment.

"When it comes to my seizure control, just okay isn’t good enough. I refuse to settle."—Rick, currently taking VIMPAT for partial-onset seizures

 

Patients and Caregivers Talk About Living with Epilepsy

A diagnosis of partial-onset seizures can be overwhelming. But it can help to know that you are not alone in facing the challenges of epilepsy. In Shared Perspectives, patients and caregivers talk about their experiences and tips for living and succeeding with epilepsy.



Watch Shared Perspectives

Personal Epilepsy Stories

Meet and hear from people currently taking VIMPAT for partial-onset seizures. Hear personal stories about their diagnosis and how they refused to settle for just okay when it came to their partial-onset seizure control. Find out how VIMPAT helped.

 

  • The importance of setting better goals for herself and what that has meant.

    Veronica C.
    The importance of setting better goals for herself and what that has meant.

    “When you think just being ‘okay’ is okay, then you’re not willing to do anything else. You have to finally realize that you need more than ‘just okay.’”

     
  • Why adding VIMPAT to his current epilepsy medications was important to him.

    Mark A.
    Why adding VIMPAT to his current medications was important to him.

    “I finally found a medication that I have added to the other medications, and that has become the mortar that I needed to add to the other bricks.”

     
  • Why just okay wasn’t good enough and the importance of always taking your epilepsy medication.

    Alyssa K.
    Why just okay wasn’t good enough and the importance of always taking your medication.

    “Okay is not good enough. I’ve got to go forward. I’ve got to work harder. This is not good enough. Keep going.”

     
  • How adding VIMPAT has helped her control her partial-onset seizure and why she refused to settle.

    Heather E.
    How adding VIMPAT has meant so much to helping her improve her partial-onset seizure control and why she refused to settle.

    “My grandmother would ask me, 'Heather, how are you doing?' And, I would say, 'I’m okay', but that was kind of a code word for 'not so great.'”

     
  • Recognizing that she wasn’t okay with her current epilepsy treatment and how she went about changing it.

    Deborah B.
    Recognizing that she wasn’t okay with her current treatment and how she went about changing it.

    “Going beyond okay means being honest with yourself and your family. It can be one of the hardest things in the world saying ‘I’m really not okay."

     
  • Always questioning what else is possible, can I do better and not just settling for just ok.

    Rick S.
    Always questioning what else is possible, can he do better, and not just settling for just okay.

    “There was a point in my life when someone would ask me how I was and I would say 'I’m okay, I’m fine,' and I would say it knowing in my heart and in my mind that I wasn’t."

     
Indication

Vimpat® (lacosamide) is a prescription medicine that is used with other medicines to treat partial-onset seizures in people 17 years of age and older with epilepsy.

Important Safety Information

Vimpat may not be for everyone. Ask your healthcare provider if Vimpat is right for you.

Warnings and Precautions

Antiepileptic drugs, including Vimpat, may cause suicidal thoughts or actions in a very small number of people, about 1 in 500. Call your healthcare provider right away if you have new or worsening symptoms of depression, any unusual changes in mood or behavior, or suicidal thoughts, behavior, or thoughts about self harm that you have never had before or may be worse than before.

Do not stop taking VIMPAT without first talking to your healthcare provider. Stopping Vimpat suddenly can cause serious problems. Stopping seizure medicine suddenly in a patient who has epilepsy can cause seizures that will not stop.

Vimpat may also cause you to feel dizzy, have double vision, feel sleepy, or have problems with coordination and walking. You should not drive, operate machinery or do other dangerous activities until you know how Vimpat affects you.

Vimpat may cause you to have an irregular heartbeat or may cause you to feel faint. Call your healthcare provider if you have a fast, slow, or pounding heartbeat, shortness of breath, feel lightheaded, or if you fainted or feel like you are going to faint.

Vimpat is a federally controlled substance (C-V) because it can be abused or lead to drug dependence. Keep your Vimpat in a safe place to protect it from theft. Do not give it to anyone else, because it may harm them.

In rare cases, Vimpat may cause a serious allergic reaction that may affect your skin or other parts of your body such as your liver or blood cells. Call your healthcare provider right away if you have a skin rash or hives, fever or swollen glands that do not go away, shortness of breath, swelling of the legs, yellowing of the skin or whites of the eyes, or dark urine.

Before taking Vimpat, tell your healthcare provider if you have or have had depression, mood problems, or suicidal thoughts or behavior; have heart, kidney or liver problems; have abused prescription medicines, street drugs or alcohol in the past, are pregnant or plan to become pregnant.

Vimpat® oral solution contains aspartame, a source of phenylalanine.

Common Adverse Reactions

In clinical trials, the most common side effects seen with Vimpat were dizziness, headache, nausea, and double vision.

Talk to your healthcare provider about other possible side effects with VIMPAT. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see additional patient information in the Patient Medication Guide. This information does not take the place of talking with your healthcare provider about your condition or your treatment.

Veronica - views on treatment and not selling

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